This week was Infertility Awareness Week, as I am sure you all saw my floods of posts. The great thing about awareness days, months or weeks is that they do what they suggest. Raise awareness. The downside is that it can also make people feel like you’re beating a dead horse or that you’re angry, bitter or broken. To some degree that is true, but not entirely. I certainly have my moments of frustration and “why us.” But mostly I just like sharing information and educating. It is quite healing for me.
I love educating people on topics that I am passionate about and that I feel are important. What I do not like doing is making people feel sorry for me (or others who are in similar situations). That’s not what I am all about. I feel that expressing myself through this journey has helped with healing and it is guiding me to my “why.” My ultimate goal is to start our family, and help others along the way. It’s that simple.
I have had this dream of starting a non-profit that helps couples battling infertility for awhile, but lately it has been much more prominent in my heart and mind. I feel as though I was placed on this pathway for a reason, and it’s not just about me or our future family. Rather, I was placed on this journey to make an impact in the lives of others. This week this dream became a little bit more real, and has me energized.
As most of you know, we are having insane battles with insurance. More like WWIII. On paper our benefits are amazing, but when it comes down to it they don’t want to pay for services. I spend countless hours and days on the phone between clinics and the insurance company and feel like I am just pounding my head against the wall. I am trying to stay positive and learn from this experience. I am learning a ton and hopefully this will give me insight for future couples in similar situations.
Through my excessive research I stumbled across a non-profit based in Virginia called INCIID (The InterNational Council on Infertility Information Dissemination – pronounced “inside”) and it is the largest infertility information and support organization in the U.S. I decided to email the director to chat with her about IVF and potentially starting a similar organization out here on the West Coast. Yesterday we arranged a call and still today I am filled with excitement. I truly believe everything happens for a reason.
We chatted about her journey, our process thus far, and about the non-profit. She gave me valuable information and tools to fight back on the insurance front and I feel as though this is a battle we can win. She told me to continue being my own advocate and to fight with facts not emotion. Lord knows that can be a challenge especially when it comes to this topic. She also mentioned that she has been running INCIID since the early 90’s and eventually she wants to pass it off, so her legacy lives on. My heart about beat out of my chest at that moment.
At the end of the call she asked if I would be interested in doing a webinar for the group of women that I have on my private Facebook page. My response was obvious… YES!!! ❤️ We are gathering information and hope to have a date and time soon. The webinar will be informational and hopefully those around me will find some value in it. This first step is exciting and I cannot wait to see what comes of all of this! One thing is for sure, our pathway just took (another) turn, but I’m embracing this winding road!